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Get ready to raise awareness for a rare disease on World Duchenne Awareness Day on September 7! This day was created to bring attention and support to those affected by Duchenne muscular dystrophy, a genetic disorder that primarily affects boys. It is the most common fatal genetic disorder diagnosed in childhood, with no known cure yet. However, thanks to this annual observance, more people are learning about the importance of early diagnosis and treatment for those living with this condition. So let's come together and spread awareness for this cause in a fun and positive way!
<div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>1854</div></div><div class='timeline-center'></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>Duchenne Muscular Dystrophy Identified</div><div class='timeline-text'>French neurologist Guillaume Duchenne first identified the muscular disorder, later named Duchenne muscular dystrophy, greatly advancing the understanding of the disease.</div></div></div><div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>1986</div></div><div class='timeline-center'></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>Cause Discovered</div><div class='timeline-text'>Scientists discovered that Duchenne muscular dystrophy is caused by specific genetic mutations on the X chromosome, that prevents the production of dystrophin, crucial for muscle function.</div></div></div><div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>1990s</div></div><div class='timeline-center'></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>Emergence of Dystrophin Testing</div><div class='timeline-text'>Invasive muscle biopsy test was replaced by blood tests to detect levels of dystrophin, improving early diagnosis of Duchenne muscular dystrophy.</div></div></div><div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>2014</div></div><div class='timeline-center'></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>World Duchenne Awareness Day Inception</div><div class='timeline-text'>September 7 was officially declared as World Duchenne Awareness Day to spread knowledge of the disease and the significance of early diagnosis and treatment.</div></div></div><div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>2019</div></div><div class='timeline-center'></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>New Therapeutic Approaches</div><div class='timeline-text'>Scientific advancements have led to promising therapeutic approaches, including gene therapy and dystrophin-restoring treatments, potentially transforming the outlook of Duchenne muscular dystrophy.</div></div></div>
<div id='' class='facts-item'><div id='' class='facts-header'><h3 id='' class='facts-number'>1</h3></div><div id='' class='facts-text-wrapper'><h3 id='' class='facts-title'>Run a marathon for Duchenne</h3><p id='' class='facts-text'>Organize or participate in a marathon to raise awareness and funds for Duchenne muscular dystrophy research. This is a great way to get active while supporting a good cause.</p></div></div><div id='' class='facts-item'><div id='' class='facts-header'><h3 id='' class='facts-number'>2</h3></div><div id='' class='facts-text-wrapper'><h3 id='' class='facts-title'>Wear red and blue</h3><p id='' class='facts-text'>The colors red and blue represent World Duchenne Awareness Day. Show your support by wearing these colors and encouraging others to do the same.</p></div></div><div id='' class='facts-item'><div id='' class='facts-header'><h3 id='' class='facts-number'>3</h3></div><div id='' class='facts-text-wrapper'><h3 id='' class='facts-title'>Host a documentary screening</h3><p id='' class='facts-text'>Find a documentary about Duchenne and host a screening for your friends and family. This can help educate others about the disease and the need for more research and support.</p></div></div><div id='' class='facts-item'><div id='' class='facts-header'><h3 id='' class='facts-number'>4</h3></div><div id='' class='facts-text-wrapper'><h3 id='' class='facts-title'>Create a social media campaign</h3><p id='' class='facts-text'>Spread awareness about Duchenne by creating a social media campaign. Share facts, personal stories, and ways to get involved with the hashtag #WorldDuchenneAwarenessDay.</p></div></div><div id='' class='facts-item'><div id='' class='facts-header'><h3 id='' class='facts-number'>5</h3></div><div id='' class='facts-text-wrapper'><h3 id='' class='facts-title'>Support a local organization</h3><p id='' class='facts-text'>Research organizations and charities in your area that support Duchenne and find ways to volunteer or donate to their cause on World Duchenne Awareness Day.</p></div></div>
<div id='' class='whywelove-item'><div id='' class='whywelove-letter-cont'><div class='whywelove-letter'>A</div></div><div id='why-we-love-main-cont'><h3 id='' class='whywelove-title'>It raises awareness for a rare disease</h3><p id='' class='whywelove-text'>World Duchenne Awareness Day shines a light on a lesser-known disease that affects thousands of people worldwide. By bringing attention to this disorder, we can educate others and aid in early diagnosis and treatment for those affected by it.</p></div></div><div id='' class='whywelove-item'><div id='' class='whywelove-letter-cont'><div class='whywelove-letter'>B</div></div><div id='why-we-love-main-cont'><h3 id='' class='whywelove-title'>It provides support and resources for families</h3><p id='' class='whywelove-text'>For families with children diagnosed with Duchenne Muscular Dystrophy, World Duchenne Awareness Day is an important reminder that they are not alone. It brings communities together and offers resources, support groups, and helpful information to those affected by the disease.</p></div></div><div id='' class='whywelove-item'><div id='' class='whywelove-letter-cont'><div class='whywelove-letter'>C</div></div><div id='why-we-love-main-cont'><h3 id='' class='whywelove-title'>It advocates for research and funding for a cure</h3><p id='' class='whywelove-text'>By highlighting the impact of Duchenne Muscular Dystrophy, World Duchenne Awareness Day also aims to advocate for increased research and funding towards finding a cure for this debilitating disease. By supporting this cause, we can make a difference in the lives of those affected by Duchenne.</p></div></div>
World Duchenne Awareness Day is celebrated on September 7 every year. In 2024 World Duchenne Awareness Day will occur on a Saturday.
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Sep 7
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2024
Sep 7
Saturday
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Sep 7
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