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TSC Global Awareness Day

Join us in spreading awareness and creating change on TSC Global Awareness Day - together, we can make a difference for those affected by tuberous sclerosis complex!
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May 15
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Mark your calendars for May 15, because it's time to raise awareness and support for TSC (Tuberous Sclerosis Complex) on TSC Global Awareness Day! This day was first established in 2013 by the Tuberous Sclerosis Alliance to spread knowledge and understanding about this rare genetic disorder. TSC affects multiple organs and can cause a variety of symptoms, but with increased awareness and research, we can make a difference in the lives of those living with this condition. So let's come together on this special day to show our support and help create a brighter future for individuals with TSC.

History of TSC Global Awareness Day

TSC Global Awareness Day Dates

TSC Global Awareness Day Timeline

<div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>1880</div></div><div class='timeline-center'></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>TSC First Described</div><div class='timeline-text'>Tuberous Sclerosis Complex (TSC) is first described in medical literature by French neurologist Désiré-Magloire Bourneville.</div></div></div><div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>1974</div></div><div class='timeline-center'></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>Gomez Criteria Established</div><div class='timeline-text'>Dr. Manuel Rodriguez Gomez establishes the Gomez criteria, the first diagnostic criteria for TSC, promoting better recognition of the condition.</div></div></div><div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>1979</div></div><div class='timeline-center'></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>Tuberous Sclerosis Alliance Formed</div><div class='timeline-text'>The Tuberous Sclerosis Alliance is established to provide support, promote research, and raise awareness about TSC.</div></div></div><div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>1993</div></div><div class='timeline-center'></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>First TSC Gene Identified</div><div class='timeline-text'>Scientists identify TSC1, the first gene associated with TSC, paving the way for genetic testing and research into targeted treatments.</div></div></div><div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>2000</div></div><div class='timeline-center'></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>Discovery of TSC2 Gene</div><div class='timeline-text'>The TSC2 gene is discovered, furthering our understanding of the genetic basis of TSC.</div></div></div><div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>2013</div></div><div class='timeline-center'></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>First TSC Global Awareness Day</div><div class='timeline-text'>The Tuberous Sclerosis Alliance establishes TSC Global Awareness Day to be celebrated annually on May 15.</div></div></div>

How to Celebrate TSC Global Awareness Day

<div id='' class='facts-item'><div id='' class='facts-header'><h3 id='' class='facts-number'>1</h3></div><div id='' class='facts-text-wrapper'><h3 id='' class='facts-title'>Educate yourself on TSC</h3><p id='' class='facts-text'>Take some time to research and learn about Tuberous Sclerosis Complex (TSC) so you can better understand the impact it has on individuals and families.</p></div></div><div id='' class='facts-item'><div id='' class='facts-header'><h3 id='' class='facts-number'>2</h3></div><div id='' class='facts-text-wrapper'><h3 id='' class='facts-title'>Wear purple</h3><p id='' class='facts-text'>Purple is the official color of TSC Global Awareness Day. Show your support by wearing purple and encouraging others to do the same.</p></div></div><div id='' class='facts-item'><div id='' class='facts-header'><h3 id='' class='facts-number'>3</h3></div><div id='' class='facts-text-wrapper'><h3 id='' class='facts-title'>Attend a fundraising event</h3><p id='' class='facts-text'>Many organizations host fundraising events on TSC Global Awareness Day. Attend one in your community or consider organizing your own to raise awareness and funds for TSC research and support programs.</p></div></div><div id='' class='facts-item'><div id='' class='facts-header'><h3 id='' class='facts-number'>4</h3></div><div id='' class='facts-text-wrapper'><h3 id='' class='facts-title'>Share your story</h3><p id='' class='facts-text'>If you or someone you know has been impacted by TSC, share your story on social media or with friends and family. This can help spread awareness and understanding of the condition.</p></div></div><div id='' class='facts-item'><div id='' class='facts-header'><h3 id='' class='facts-number'>5</h3></div><div id='' class='facts-text-wrapper'><h3 id='' class='facts-title'>Support a TSC organization</h3><p id='' class='facts-text'>Consider making a donation to a TSC organization or volunteering your time to support their efforts in raising awareness and providing resources for those affected by the condition.</p></div></div>

Why TSC Global Awareness Day is Important

<div id='' class='whywelove-item'><div id='' class='whywelove-letter-cont'><div class='whywelove-letter'>A</div></div><div id='why-we-love-main-cont'><h3 id='' class='whywelove-title'>It raises awareness for a worthy cause</h3><p id='' class='whywelove-text'>TSC Global Awareness Day is dedicated to raising awareness about tuberous sclerosis complex, a rare genetic disorder that affects around 50,000 people in the United States. By bringing attention to this condition, we can educate others and foster understanding and support for those who have it.</p></div></div><div id='' class='whywelove-item'><div id='' class='whywelove-letter-cont'><div class='whywelove-letter'>B</div></div><div id='why-we-love-main-cont'><h3 id='' class='whywelove-title'>It brings people together</h3><p id='' class='whywelove-text'>TSC Global Awareness Day is a day where individuals from all over the world come together to show their support and share stories of their experiences with tuberous sclerosis complex. This sense of community can be empowering for those affected by the disorder and their loved ones.</p></div></div><div id='' class='whywelove-item'><div id='' class='whywelove-letter-cont'><div class='whywelove-letter'>C</div></div><div id='why-we-love-main-cont'><h3 id='' class='whywelove-title'>It promotes advocacy and research</h3><p id='' class='whywelove-text'>On TSC Global Awareness Day, organizations and individuals often use the opportunity to advocate for improved healthcare and increased funding for research on tuberous sclerosis complex. These efforts are crucial in finding new treatments and, hopefully, a cure for this disorder.</p></div></div>

5 Eye-Opening Facts on TSC Global Awareness Day

<div class='facts-item'><div class='facts-number-wrapper'><p class='facts-number'>1</p></div><div class='facts-core-content'><h3 class='facts-title'>TSC is a Leading Cause of Genetic Epilepsy</h3><p class='facts-content'>TSC is responsible for nearly 40% of symptomatic epilepsy cases, emphasizing the pressing need for improved treatment strategies and care.</p></div></div><div class='facts-item'><div class='facts-number-wrapper'><p class='facts-number'>2</p></div><div class='facts-core-content'><h3 class='facts-title'>TSC Affects Both Genders Equally</h3><p class='facts-content'>The condition is not specific to one gender. Approximately equal numbers of males and females are affected by this genetic disorder.</p></div></div><div class='facts-item'><div class='facts-number-wrapper'><p class='facts-number'>3</p></div><div class='facts-core-content'><h3 class='facts-title'>There is a Wide Range of Severity in TSC</h3><p class='facts-content'>The symptoms and severity in people with Tuberous Sclerosis Complex can vary widely. Some may have mild symptoms or remain undiagnosed for years, while others may experience serious complications from birth.</p></div></div><div class='facts-item'><div class='facts-number-wrapper'><p class='facts-number'>4</p></div><div class='facts-core-content'><h3 class='facts-title'>TSC has a Spontaneous Mutation Rate of Approximately 2/3rds</h3><p class='facts-content'>Two-thirds of TSC cases occur due to spontaneous mutation, which means they are not inherited from a parent who has the TSC gene, underscoring the unpredictability of this condition.</p></div></div><div class='facts-item'><div class='facts-number-wrapper'><p class='facts-number'>5</p></div><div class='facts-core-content'><h3 class='facts-title'>TSC Can Be Diagnosed at Any Age</h3><p class='facts-content'>Though symptoms often appear during childhood, TSC can be diagnosed at any age, with some mild cases not recognized until adulthood.</p></div></div>

TSC Global Awareness Day FAQs

When is TSC Global Awareness Day?

TSC Global Awareness Day is celebrated on May 15 every year. In 2024, TSC Global Awareness Day will occur on a Wednesday.

TSC Global Awareness Day Dates



May 15



May 15



May 15



May 15



May 15


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