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TSC Global Awareness Day

Join us in spreading awareness and creating change on TSC Global Awareness Day - together, we can make a difference for those affected by tuberous sclerosis complex!

Saturday

May 2027

Last updated February 7, 2026 · by the Holiday Calendar Team

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YEARLY DATEMay 15

OBSERVED INInternationally

CATEGORYAwareness

SUBCATEGORYRare Diseases

INTRO

Introduction

PHOTO

Mark your calendars for May 15, because it's time to raise awareness and support for TSC (Tuberous Sclerosis Complex) on TSC Global Awareness Day! This day was first established in 2013 by the Tuberous Sclerosis Alliance to spread knowledge and understanding about this rare genetic disorder. TSC affects multiple organs and can cause a variety of symptoms, but with increased awareness and research, we can make a difference in the lives of those living with this condition. So let's come together on this special day to show our support and help create a brighter future for individuals with TSC.

TIMELINE

TSC Global Awareness Day Timeline

TSC First Described

Tuberous Sclerosis Complex (TSC) is first described in medical literature by French neurologist Désiré-Magloire Bourneville.

Gomez Criteria Established

Dr. Manuel Rodriguez Gomez establishes the Gomez criteria, the first diagnostic criteria for TSC, promoting better recognition of the condition.

Tuberous Sclerosis Alliance Formed

The Tuberous Sclerosis Alliance is established to provide support, promote research, and raise awareness about TSC.

First TSC Gene Identified

Scientists identify TSC1, the first gene associated with TSC, paving the way for genetic testing and research into targeted treatments.

Discovery of TSC2 Gene

The TSC2 gene is discovered, furthering our understanding of the genetic basis of TSC.

First TSC Global Awareness Day

The Tuberous Sclerosis Alliance establishes TSC Global Awareness Day to be celebrated annually on May 15.

GET INVOLVED

How to Celebrate TSC Global Awareness Day

Educate yourself on TSC

Take some time to research and learn about Tuberous Sclerosis Complex (TSC) so you can better understand the impact it has on individuals and families.

WEAR

Wear purple

Purple is the official color of TSC Global Awareness Day. Show your support by wearing purple and encouraging others to do the same.

ATTEND

Attend a fundraising event

Many organizations host fundraising events on TSC Global Awareness Day. Attend one in your community or consider organizing your own to raise awareness and funds for TSC research and support programs.

Share your story

If you or someone you know has been impacted by TSC, share your story on social media or with friends and family. This can help spread awareness and understanding of the condition.

SUPPORT

Support a TSC organization

Consider making a donation to a TSC organization or volunteering your time to support their efforts in raising awareness and providing resources for those affected by the condition.

WHY THIS DAY MATTERS

Why TSC Global Awareness Day is Important

It promotes advocacy and research

On TSC Global Awareness Day, organizations and individuals often use the opportunity to advocate for improved healthcare and increased funding for research on tuberous sclerosis complex. These efforts are crucial in finding new treatments and, hopefully, a cure for this disorder.

It raises awareness for a worthy cause

TSC Global Awareness Day is dedicated to raising awareness about tuberous sclerosis complex, a rare genetic disorder that affects around 50,000 people in the United States. By bringing attention to this condition, we can educate others and foster understanding and support for those who have it.

It brings people together

TSC Global Awareness Day is a day where individuals from all over the world come together to show their support and share stories of their experiences with tuberous sclerosis complex. This sense of community can be empowering for those affected by the disorder and their loved ones.