11 saved#4,957 of 6,224

EDS Awareness Month

Join us in spreading awareness and supporting those affected by EDS during this special month dedicated to raising awareness for the condition.

Saturday

1–31

May 2027

Last updated February 7, 2026 · by the Holiday Calendar Team

Have an update or spot an error?

YEARLY DATEAll of May

OBSERVED INInternationally

CATEGORYAwareness

SUBCATEGORYRare Diseases

INTRO

Introduction

PHOTO

Get ready to raise awareness and support for those living with Ehlers-Danlos Syndrome (EDS) as we kick off EDS Awareness Month on May 1! EDS is a rare genetic disorder that affects the body's connective tissues, causing symptoms such as joint hypermobility, chronic pain, and skin fragility. This month-long observance was first recognized in 1987 by the Ehlers-Danlos National Foundation in an effort to educate the public about this often misunderstood condition. Let's use this month to spread understanding and support for those living with EDS and their families.

TIMELINE

EDS Awareness Month Timeline

Identification of EDS

Ehlers-Danlos Syndrome was first identified and described by two dermatologists, Edvard Ehlers from Denmark and Henri-Alexandre Danlos from France.

First EDS Awareness Month

The Ehlers-Danlos National Foundation officially recognized May as EDS Awareness Month in an effort to raise knowledge and understanding.

International EDS Foundation Formation

An international organization, the Ehlers-Danlos Society, was established to provide global solutions for EDS research, collaboration, and patient support.

Global Learning Conference

EDS communities around the world come together for the first time at a learning conference in Ghent, Belgium to exchange knowledge and expertise.

New EDS Types Defined

The International Consortium on the Ehlers-Danlos Syndromes redefines 13 different types of EDS, improving diagnosis and research.

GET INVOLVED

How to Celebrate EDS Awareness Month

Educate yourself and others

Take the time to learn more about EDS (Ehlers-Danlos Syndrome) and share your knowledge with friends and family. This can help raise awareness and understanding of the condition.

ORGANIZE

Organize a fundraiser

Get creative and organize a fundraiser to support EDS research and awareness. This could be anything from a bake sale to a charity walk or run.

Share your story

If you or someone you know has EDS, share your personal story on social media or start a blog. This can help raise awareness and provide support for others living with the condition.

WEAR

Wear zebra stripes

Zebra stripes are the symbol for EDS awareness. Wear some zebra print clothing or accessories to show your support and start conversations about the condition.

ATTEND

Attend an EDS event

Check out local events or conferences focused on EDS and attend to learn more, connect with others, and support the cause.

WHY THIS DAY MATTERS

Why EDS Awareness Month is Important

Show Support and Solidarity

Lastly, EDS Awareness Month is important because it allows us to come together as a community to show support and solidarity for those living with EDS. By participating in events and sharing our stories, we can create a sense of belonging and offer hope to those who may feel alone in their struggles. Together, we can make a difference in the lives of those affected by this condition.

Raise Awareness and Educate Others

EDS Awareness Month is crucial in spreading information and educating others about Ehlers-Danlos Syndrome. This rare genetic condition affects connective tissues and can have a huge impact on a person's life. By raising awareness, we can help to educate others and promote understanding and compassion for those living with EDS.

Advocate for Research and Funding

EDS Awareness Month also provides an opportunity for advocating for more research and funding towards finding better treatments and potentially even a cure for this condition. By highlighting the challenges faced by those with EDS, we can encourage support from individuals, organizations, and government agencies towards making progress in improving the lives of those affected.

Related holidays

Fibromyalgia Education and Awareness Month

Join us this Fibromyalgia Education and Awareness Month to learn more about this chronic condition, support those affected, and spread awareness for better understanding.

Lupus Awareness Month

Join us in raising awareness for Lupus during Lupus Awareness Month - help spread the word and support those affected by this difficult disease.

M.E. Awareness Week

Join us in raising awareness for M.E. during this special week - spread the word, wear blue, and support those affected by this chronic illness.

Syringomyelia Awareness Month

Join us in raising awareness and finding a cure for Syringomyelia this month. Let's make a difference for those living with this condition.

23Read

FOR MARKETERS & CREATORS

Turn every day into a moment your audience actually shows up for.

8.4M

Monthly readers

5K+

Holidays tracked

Holiday Calendar for Brands Developer API