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Rett Syndrome Awareness Month

Join us in raising awareness for Rett Syndrome this month - spread the word, wear purple, and support those affected by this rare disorder.

Thursday

1–31

October 2026

Last updated February 7, 2026 · by the Holiday Calendar Team

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YEARLY DATEAll of October

OBSERVED INUnited States

CATEGORYAwareness

SUBCATEGORYRare Diseases

INTRO

Introduction

PHOTO

Join the fight to raise awareness for Rett Syndrome this October, as we recognize it as Rett Syndrome Awareness Month. This rare neurological disorder affects mainly females and is caused by a genetic mutation. It was first discovered in 1966 by Dr. Andreas Rett, and since then, efforts have been made to spread knowledge about the condition and support those living with it. So let's use this month to educate ourselves and others, show our support for those affected, and work towards finding a cure!

TIMELINE

Rett Syndrome Awareness Month Timeline

Rett Syndrome Discovery

Dr. Andreas Rett identifies this unique neurological disorder, affecting mainly females, later named as Rett Syndrome.

Rett's Syndrome Recognition

Swedish researcher Bengt Hagberg publishes a report recognizing Rett Syndrome as a specific disorder, contributing to research on the condition worldwide.

Gene Mutation Identified

Scientists discover MECP2, the gene mutation responsible for most cases of Rett Syndrome, aiding in early diagnosis and increasing our understanding of the disorder.

Rett Syndrome Mouse Model Cured

Researchers manage to reverse Rett Syndrome symptoms in a mouse model, providing hope for possible future treatment options for people with the disorder.

Rett Syndrome Awareness Month Established

October is officially recognized as Rett Syndrome Awareness Month, annually promoting awareness, research, and support for those living with the syndrome.

GET INVOLVED

How to Celebrate Rett Syndrome Awareness Month

Host a fundraising event

Organize a charity event, such as a walk or run, to raise awareness and funds for Rett Syndrome research. Invite friends, family, and community members to participate and donate to the cause.

Share information on social media

Spread the word about Rett Syndrome by sharing facts, statistics, and personal stories on social media. Use hashtags like #RettSyndromeAwarenessMonth and #RettSyndromeWarrior to reach a wider audience.

EDUCATE

Educate yourself and others

Take time to learn more about Rett Syndrome and its impact on individuals and families. Share your knowledge with others and raise awareness about this rare disorder.

WEAR

Wear purple

Purple is the official color of Rett Syndrome awareness. Show your support by wearing purple clothing or accessories throughout the month of October.

VOLUNTEER

Volunteer with a local organization

Find a local organization that supports individuals with Rett Syndrome and offer your time and skills to make a difference. This could include helping with events, fundraising, or providing support to families affected by the disorder.

WHY THIS DAY MATTERS

Why Rett Syndrome Awareness Month is Important

Drive progress towards finding a cure

With increased awareness comes increased funding for research and clinical trials, bringing us one step closer to finding a cure for Rett syndrome. By recognizing Rett Syndrome Awareness Month, we can contribute to the overall progress towards a better future for those affected by this disorder.

Raise awareness and understanding

Rett syndrome is a rare genetic disorder that affects the development of the brain, resulting in severe physical and cognitive disabilities. By having a designated month to bring attention to this disorder, we can educate others and increase understanding and empathy for those experiencing it.

Support affected individuals and families

Rett syndrome can have a significant impact on both individuals living with the condition and their families. By having an awareness month, we can come together as a community to support and advocate for those affected by Rett syndrome and raise funds for research and resources to improve their lives.

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Huntington’s Disease Awareness Month

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