Rare Diseases & Conditions
Holidays
Rare Disease Day plus the months for Huntington's, sarcoidosis, hemophilia, and the conditions you may never have heard of but someone is fighting daily.
January
1 holiday
February
5 holidays
World Aspergillosis Day
Join the fight against Aspergillosis on World Aspergillosis Day - raise awareness and support those affected by this serious fungal infection.
Cholangiocarcinoma Awareness Month
Join the fight against cholangiocarcinoma this month by raising awareness and supporting those affected by this rare form of cancer.
International Angelman Day
Let's join together to raise awareness and support for those with Angelman Syndrome on International Angelman Day - every voice counts!
World Cholangiocarcinoma Day
Raising awareness for World Cholangiocarcinoma Day – giving a voice to those fighting this rare cancer and working towards a cure!
Rare Disease Day
Join us in raising awareness for rare diseases on Rare Disease Day - help us make a difference and spread knowledge about these special causes.
March
3 holidays
National Aplastic Anemia & MDS Awareness Week
A week-long awareness observance in early March raising awareness of aplastic anemia and myelodysplastic syndromes and promoting earlier diagnosis and treatment.
Trisomy Awareness Month
An awareness observance in March raising awareness of trisomy conditions, educating the public on health impacts, and promoting support for affected individuals and families.
IUGR Awareness Day
An awareness observance on March 12 raising awareness of intrauterine growth restriction (IUGR), promoting education on its causes, risks, early detection, and support for affected families.
April
7 holidays
Sarcoidosis Awareness Month
Join the fight against sarcoidosis and raise awareness this month - let's spread knowledge, support those affected, and find a cure together!
National Sjogren’s Syndrome Awareness Month
Join the fight to raise awareness for Sjogren's Syndrome this month - educate, advocate, and support those affected by this autoimmune disease.
Bohring-Opitz Syndrome Day
Join us in raising awareness and supporting those with Bohring-Opitz Syndrome on this special day - spread love, education, and hope!
World Chagas Disease Day
Join the fight against Chagas Disease on World Chagas Disease Day - raise awareness, donate to research, and support those affected by this neglected disease.
World Hemophilia Day
On World Hemophilia Day, let's spread awareness and support for those living with this condition. Together, we can make a difference!
Congenital Diaphragmatic Hernia Action Day
On Congenital Diaphragmatic Hernia Action Day, join the fight to raise awareness and support for those affected by this rare birth defect. Let's make a difference together!
National Sarcoidosis Day
Join us in raising awareness for Sarcoidosis this National Sarcoidosis Day - let's spread the word to help find a cure!
May
6 holidays
World Ankylosing Spondylitis Day
Raise awareness, spark conversations, and fuel research on World Ankylosing Spondylitis Day - together we can battle this crippling disease!
Huntington’s Disease Awareness Month
Join the fight against Huntington's Disease this month and help raise awareness for this debilitating condition. Every action makes a difference!
Syringomyelia Awareness Month
Join us in raising awareness and finding a cure for Syringomyelia this month. Let's make a difference for those living with this condition.
EDS Awareness Month
Join us in spreading awareness and supporting those affected by EDS during this special month dedicated to raising awareness for the condition.
TSC Global Awareness Day
Join us in spreading awareness and creating change on TSC Global Awareness Day - together, we can make a difference for those affected by tuberous sclerosis complex!
World Multiple Sclerosis Day
Join us in raising awareness for Multiple Sclerosis on World MS Day - together we can make a difference!
June
Happening now2 holidays
Myasthenia Gravis Awareness Month
Let's spread awareness and support for those living with Myasthenia Gravis this month - join the fight against this rare neuromuscular disease!
World Sickle Cell Awareness Day
Show your support on World Sickle Cell Awareness Day - help spread awareness and raise funds to fight against this debilitating disease!
July
3 holidays
Fragile X Awareness Month
Join us in raising awareness and support for Fragile X Syndrome this month. Together, we can make a difference for those affected by this condition.
Hemochromatosis Screening And Awareness Month
It's time to raise awareness and take action during Hemochromatosis Screening And Awareness Month - let's fight against this inherited condition together!
World Sjogren’s Day
Join the global movement on World Sjogren's Day to raise awareness and support for those living with this chronic autoimmune disease.
August
2 holidays
Spinal Muscular Atrophy Awareness Month
Join the fight against Spinal Muscular Atrophy this month and help raise awareness for those affected by this rare disease.
Cloves Syndrome Awareness Day
Join us in raising awareness for Cloves Syndrome on this special day - together, we can make a difference and support those affected by this rare disease.
September
3 holidays
World Duchenne Awareness Day
Join the global movement to raise awareness for Duchenne Muscular Dystrophy on World Duchenne Awareness Day - let's make a difference together!
National Jeans for Genes Day
Dress down in your favourite denim for National Jeans for Genes Day and support groundbreaking research into genetic disorders!
International Ataxia Awareness Day
Join the global movement and raise awareness for Ataxia on International Ataxia Awareness Day - together, we can make a difference!
November
3 holidays
National Marrow Awareness Month
This National Marrow Awareness Month, join the fight to save lives by registering as a bone marrow donor and spreading awareness about the importance of donation.
Color the World Orange Day
Join us in painting the world orange this Color the World Orange Day and help spread awareness about mental health!
Microtia Awareness Day
Join us in spreading awareness for Microtia on this special day, honoring those born with a small ear and showing support for research and resources!