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Get ready to raise awareness and show support for those affected by Cloves Syndrome on August 3, also known as Cloves Syndrome Awareness Day. This rare genetic disorder affects various parts of the body, causing overgrowth, vascular malformations, and other health complications. The name "Cloves" is an acronym for the different symptoms associated with this condition: Congenital lipomatous overgrowth, Vascular malformations, Epidermal nevi, Spinal/Skeletal abnormalities. On this day, we honor those who are living with Cloves Syndrome and their families, while spreading knowledge about this lesser-known disorder. Let's come together to make a positive impact and bring hope to those affected by Cloves Syndrome.
<div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>2007</div></div><div class='timeline-center'></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>Cloves Syndrome Identification</div><div class='timeline-text'>The first cases of Cloves Syndrome were identified, marked by previously unknown combinations of symptoms, leading to the establishment of the CLOVES acronym.</div></div></div><div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>2012</div></div><div class='timeline-center'></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>Genetic Origin Discovered</div><div class='timeline-text'>Scientists identified the genetic mutation in the PIK3CA gene that causes Cloves Syndrome, significantly advancing the understanding of the disease.</div></div></div><div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>2014</div></div><div class='timeline-center'></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>First Cloves Syndrome Conference</div><div class='timeline-text'>The first international conference dedicated to Cloves Syndrome was held, bringing together patients, families, and medical professionals.</div></div></div><div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>2016</div></div><div class='timeline-center'></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>Foundation of CLOVES Syndrome Community</div><div class='timeline-text'>The non-profit organization CLOVES Syndrome Community was founded to provide support to those affected and raise awareness about the condition.</div></div></div><div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>2018</div></div><div class='timeline-center'></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>First Cloves Syndrome Awareness Day</div><div class='timeline-text'>The first Cloves Syndrome Awareness Day was celebrated, spreading knowledge about the disorder and showing support for those affected.</div></div></div><div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>2020</div></div><div class='timeline-center'></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>Cloves Syndrome Research Advances</div><div class='timeline-text'>Researchers made significant advances in understanding the syndrome and developing targeted treatments, offering hope for improved quality of life for those affected.</div></div></div>
<div id='' class='facts-item'><div id='' class='facts-header'><h3 id='' class='facts-number'>1</h3></div><div id='' class='facts-text-wrapper'><h3 id='' class='facts-title'>Host a fundraiser</h3><p id='' class='facts-text'>Organize a fundraiser event to raise awareness and funds for Cloves Syndrome. This could be a charity dinner, walk-a-thon, or auction.</p></div></div><div id='' class='facts-item'><div id='' class='facts-header'><h3 id='' class='facts-number'>2</h3></div><div id='' class='facts-text-wrapper'><h3 id='' class='facts-title'>Share information on social media</h3><p id='' class='facts-text'>Spread awareness about Cloves Syndrome by sharing facts and information on social media platforms. Use hashtags like #ClovesSyndromeAwareness to reach a wider audience.</p></div></div><div id='' class='facts-item'><div id='' class='facts-header'><h3 id='' class='facts-number'>3</h3></div><div id='' class='facts-text-wrapper'><h3 id='' class='facts-title'>Organize a community walk</h3><p id='' class='facts-text'>Gather your friends, family, and community members for a walk to raise awareness for Cloves Syndrome. You can also sell t-shirts or other merchandise to raise funds for research and support for those affected by the disorder.</p></div></div><div id='' class='facts-item'><div id='' class='facts-header'><h3 id='' class='facts-number'>4</h3></div><div id='' class='facts-text-wrapper'><h3 id='' class='facts-title'>Attend a support group meeting</h3><p id='' class='facts-text'>If you or someone you know has been diagnosed with Cloves Syndrome, attending a support group meeting can be a great way to connect with others and share experiences. It can also provide valuable resources and information.</p></div></div><div id='' class='facts-item'><div id='' class='facts-header'><h3 id='' class='facts-number'>5</h3></div><div id='' class='facts-text-wrapper'><h3 id='' class='facts-title'>Educate yourself and others</h3><p id='' class='facts-text'>Take the time to learn more about Cloves Syndrome and share what you learn with others. The more people know about this rare disorder, the more support and understanding those affected by it will receive.</p></div></div>
<div id='' class='whywelove-item'><div id='' class='whywelove-letter-cont'><div class='whywelove-letter'>A</div></div><div id='why-we-love-main-cont'><h3 id='' class='whywelove-title'>It raises awareness for a rare condition</h3><p id='' class='whywelove-text'>Cloves Syndrome is a genetic disorder that affects a small number of individuals worldwide. By recognizing and acknowledging Cloves Syndrome Awareness Day, we can bring more attention to this condition and educate others about its symptoms and challenges.</p></div></div><div id='' class='whywelove-item'><div id='' class='whywelove-letter-cont'><div class='whywelove-letter'>B</div></div><div id='why-we-love-main-cont'><h3 id='' class='whywelove-title'>It shows support for those affected by the syndrome</h3><p id='' class='whywelove-text'>For those living with Cloves Syndrome, it may feel isolating to have such a rare condition. By celebrating Cloves Syndrome Awareness Day, we are showing our support and solidarity for those who may feel alone in their struggles.</p></div></div><div id='' class='whywelove-item'><div id='' class='whywelove-letter-cont'><div class='whywelove-letter'>C</div></div><div id='why-we-love-main-cont'><h3 id='' class='whywelove-title'>It promotes research and fundraising for a cure</h3><p id='' class='whywelove-text'>With increased awareness comes increased funding for research and potential treatments for Cloves Syndrome. By participating in activities or donating on Cloves Syndrome Awareness Day, we can help make strides towards finding a cure for this rare condition.</p></div></div>
<div class='facts-item'><div class='facts-number-wrapper'><p class='facts-number'>1</p></div><div class='facts-core-content'><h3 class='facts-title'>Cloves Syndrome is Part of the PIK3CA-Related Overgrowth Spectrum (PROS)</h3><p class='facts-content'>Cloves Syndrome is part of a spectrum of diseases caused by mutations in the PIK3CA gene, known as the PIK3CA-Related Overgrowth Spectrum (PROS). This group of disorders presents a range of symptoms, with Cloves Syndrome representing one of the more severe types of these conditions.</p></div></div><div class='facts-item'><div class='facts-number-wrapper'><p class='facts-number'>2</p></div><div class='facts-core-content'><h3 class='facts-title'>Cloves Syndrome is Extremely Rare</h3><p class='facts-content'>The prevalence rate of Cloves Syndrome is unknown because it is so rare. Only about 200 medically documented cases exist worldwide, making awareness and research crucial for improving diagnostics and treatments.</p></div></div><div class='facts-item'><div class='facts-number-wrapper'><p class='facts-number'>3</p></div><div class='facts-core-content'><h3 class='facts-title'>Cloves Syndrome is Generally Not Inherited</h3><p class='facts-content'>In most instances, Cloves Syndrome arises from spontaneous genetic changes, known as somatic mutations, rather than being inherited from parent to child. </p></div></div><div class='facts-item'><div class='facts-number-wrapper'><p class='facts-number'>4</p></div><div class='facts-core-content'><h3 class='facts-title'>Symptoms Can Vary Greatly from Person to Person</h3><p class='facts-content'>Cloves Syndrome can cause a wide array of symptoms ranging from skin abnormalities and overgrown tissues to issues with blood vessels and bones. Due to this diversity, individual treatment plans can vary greatly.</p></div></div><div class='facts-item'><div class='facts-number-wrapper'><p class='facts-number'>5</p></div><div class='facts-core-content'><h3 class='facts-title'>Cloves Syndrome Can Cause Complications Throughout a Person's Life</h3><p class='facts-content'>Those living with Cloves Syndrome often experience recurring health problems that can lead to a need for ongoing medical care and surgeries throughout their lives. This reality underscores the importance of ongoing support, care, and medical research for Cloves Syndrome.</p></div></div>
Cloves Syndrome Awareness Day is celebrated on August 3rd every year. In 2024, the date will fall on a Saturday.
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