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Syringomyelia Awareness Month

Join us in raising awareness and finding a cure for Syringomyelia this month. Let's make a difference for those living with this condition.

Saturday

1–31

May 2027

Last updated February 7, 2026 · by the Holiday Calendar Team

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YEARLY DATEAll of May

OBSERVED INUnited States

CATEGORYAwareness

SUBCATEGORYRare Diseases

INTRO

Introduction

PHOTO

May 1 marks the start of Syringomyelia Awareness Month, a time to raise awareness and support for those affected by this rare neurological condition. Syringomyelia is a disorder in which fluid-filled cysts form in the spinal cord, causing a range of symptoms such as pain, weakness, and numbness. This month is dedicated to educating people about the condition and supporting ongoing research efforts towards finding a cure. So let's come together and show our support for those living with syringomyelia – every effort counts in making a difference!

TIMELINE

Syringomyelia Awareness Month Timeline

Syringomyelia Diagnosis

In 1824, an English physician, Charles-Édouard Brown-Séquard, makes the first recorded diagnosis of Syringomyelia.

Disorder Is Named

The term "Syringomyelia" was derived and first used by a German neurologist, Moritz Romberg in 1863.

First Surgical Intervention

The first surgical intervention for Syringomyelia is performed by Dr. Charles Elsberg in 1914.

Rise of Modern Surgery

The development and accessibility of MRI technology in the late 1970s revolutionized surgical treatment and management of Syringomyelia.

Syringomyelia Awareness Month Initiated

Syringomyelia Awareness Month is initiated in May 2012 to raise awareness and support for those affected by the condition.

Ongoing Research and Support

Today, scientists continue to research better treatment options, while patients and advocates work year-round to raise awareness on Syringomyelia.

GET INVOLVED

How to Celebrate Syringomyelia Awareness Month

Host a fundraising event

Organize a charity event to raise money and awareness for Syringomyelia. This could be a dinner, concert, or any other type of event that will bring people together to support the cause.

Share your story on social media

Spread awareness by sharing your personal experience with Syringomyelia on social media. Use hashtags like #SyringomyeliaAwarenessMonth and #FightSyringomyelia to reach a larger audience.

EDUCATE

Educate yourself and others

Take the time to learn more about Syringomyelia and share your knowledge with others. This could be through organizing a seminar or simply having conversations with friends and family.

CREATE

Create a Syringomyelia support group

Connect with others who are affected by Syringomyelia and create a support group. This will provide a safe space for people to share their experiences and offer support to one another.

ORGANIZE

Organize a walk or run event

Get active and raise awareness at the same time by organizing a walk or run event. Encourage participants to wear purple, the color for Syringomyelia awareness, and donate any proceeds to a related charity.

WHY THIS DAY MATTERS

Why Syringomyelia Awareness Month is Important

It helps raise funds for research and support services

Syringomyelia Awareness Month also serves as an opportunity to raise funds for research and support services for those affected by the condition. This can lead to advancements in treatment and potentially a cure for Syringomyelia.

It raises awareness for a rare condition

Syringomyelia is a neurological condition that affects the spinal cord, causing fluid-filled cysts to form in the spinal cord. By dedicating a whole month to raising awareness, more people will learn about this condition and its symptoms, helping to improve early diagnosis and treatment.

It offers support for those affected by Syringomyelia

For those living with Syringomyelia or caring for someone who does, having a dedicated month of awareness can provide a sense of community and support. This month encourages people to share their experiences and connect with others who are going through similar struggles.

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