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Get ready to raise awareness and show support for those living with hemophilia on World Hemophilia Day, celebrated every year on April 17! This day was first established in 1989 by the World Federation of Hemophilia (WFH) to honor the birthday of WFH founder Frank Schnabel and to bring attention to this rare genetic disorder. With over 400,000 people worldwide affected by hemophilia, it's important to spread knowledge and understanding about this condition. Let's make April 17 a day of education, advocacy, and positivity for the hemophilia community!
<div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>1800s</div></div><div class='timeline-center'></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>Hemophilia Identified</div><div class='timeline-text'>Hemophilia is recognized as a hereditary disorder by several doctors around the globe during the 1800s.</div></div></div><div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>1937</div></div><div class='timeline-center'></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>First Hemophilia Treatment</div><div class='timeline-text'>Dr. Patek and Dr. Taylor of Harvard University discover antihemophilic globulin which becomes the basis for treatment in Hemophilia.</div></div></div><div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>1963</div></div><div class='timeline-center'></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>WFH's Foundation</div><div class='timeline-text'>The World Federation of Hemophilia (WFH) was established by Frank Schnabel to improve care and treatment globally.</div></div></div><div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>1989</div></div><div class='timeline-center'></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>First World Hemophilia Day</div><div class='timeline-text'>World Hemophilia Day was first established by the WFH to honour its founder, and raise awareness about hemophilia.</div></div></div><div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>1992</div></div><div class='timeline-center'></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>Clotting Factor VIII's Gene Cloned</div><div class='timeline-text'>Scientists successfully cloned the Factor VIII gene, paving the way for safer and more effective treatments.</div></div></div><div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>2018</div></div><div class='timeline-center'></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>Gene Therapy Breakthroughs</div><div class='timeline-text'>Progress in gene therapy provides hope for a lifelong cure, with successful trials conducted on patients.</div></div></div>
<div id='' class='facts-item'><div id='' class='facts-header'><h3 id='' class='facts-number'>1</h3></div><div id='' class='facts-text-wrapper'><h3 id='' class='facts-title'>Host a fundraising event</h3><p id='' class='facts-text'>Gather your community and organize a fundraising event to raise awareness and funds for hemophilia research and treatment.</p></div></div><div id='' class='facts-item'><div id='' class='facts-header'><h3 id='' class='facts-number'>2</h3></div><div id='' class='facts-text-wrapper'><h3 id='' class='facts-title'>Share educational resources</h3><p id='' class='facts-text'>Spread knowledge about hemophilia by sharing educational resources, such as articles, videos, and infographics, on social media or with your friends and family.</p></div></div><div id='' class='facts-item'><div id='' class='facts-header'><h3 id='' class='facts-number'>3</h3></div><div id='' class='facts-text-wrapper'><h3 id='' class='facts-title'>Participate in a blood drive</h3><p id='' class='facts-text'>One way to support those with hemophilia is to donate blood. Organize or participate in a blood drive on World Hemophilia Day to help those in need of blood transfusions.</p></div></div><div id='' class='facts-item'><div id='' class='facts-header'><h3 id='' class='facts-number'>4</h3></div><div id='' class='facts-text-wrapper'><h3 id='' class='facts-title'>Create a support group</h3><p id='' class='facts-text'>Connect with others who have hemophilia by creating a support group in your community. This can be a great way to provide emotional support and share experiences and resources.</p></div></div><div id='' class='facts-item'><div id='' class='facts-header'><h3 id='' class='facts-number'>5</h3></div><div id='' class='facts-text-wrapper'><h3 id='' class='facts-title'>Wear red</h3><p id='' class='facts-text'>Show your support for those with hemophilia by wearing red on World Hemophilia Day. This simple act can help raise awareness and start conversations about the condition.</p></div></div>
<div id='' class='whywelove-item'><div id='' class='whywelove-letter-cont'><div class='whywelove-letter'>A</div></div><div id='why-we-love-main-cont'><h3 id='' class='whywelove-title'>Increase awareness and understanding</h3><p id='' class='whywelove-text'>World Hemophilia Day is a crucial reminder to educate people about the bleeding disorder. By raising awareness, we can help dispel myths and reduce stigma surrounding hemophilia, ultimately leading to better understanding and support for those affected by it.</p></div></div><div id='' class='whywelove-item'><div id='' class='whywelove-letter-cont'><div class='whywelove-letter'>B</div></div><div id='why-we-love-main-cont'><h3 id='' class='whywelove-title'>Advocate for equal access to treatment</h3><p id='' class='whywelove-text'>World Hemophilia Day highlights the need for equal access to safe and effective treatment for all individuals living with the bleeding disorder. It also serves as a platform to advocate for improved healthcare policies and funding for research towards finding a cure.</p></div></div><div id='' class='whywelove-item'><div id='' class='whywelove-letter-cont'><div class='whywelove-letter'>C</div></div><div id='why-we-love-main-cont'><h3 id='' class='whywelove-title'>Support individuals and families affected by hemophilia</h3><p id='' class='whywelove-text'>The day also recognizes the challenges faced by those living with hemophilia and their families. It calls for support and solidarity from communities, governments, and organizations to provide resources, education, and services that improve the quality of life for those affected by the condition.</p></div></div>
<div class='facts-item'><div class='facts-header'><h3 class='facts-number'>1</h3></div><div class='facts-text-wrapper'><h3 class='facts-title'>World Hemophilia Day is Recognized Globally</h3><p class='facts-text'>Since its inception, World Hemophilia Day has been observed around the globe, promoting inclusivity and continuous effort towards achieving treatment for all.</p></div></div><div class='facts-item'><div class='facts-header'><h3 class='facts-number'>2</h3></div><div class='facts-text-wrapper'><h3 class='facts-title'>Each Year Has A Unique Theme to Highlight Specific Issues</h3><p class='facts-text'>Every year, the World Federation of Hemophilia designates a theme for World Hemophilia Day to bring attention to specific areas within the hemophilia community that need particular focus. Themes in the past have included issues like "women and bleeding disorders" and "reaching out - the first step to care".</p></div></div><div class='facts-item'><div class='facts-header'><h3 class='facts-number'>3</h3></div><div class='facts-text-wrapper'><h3 class='facts-title'>There are Multiple Ways to Participate in World Hemophilia Day</h3><p class='facts-text'>From attending local events, sharing information online, donating to charitable organizations supporting the cause or participating in a local blood drive, there are many ways individuals can actively support and participate in World Hemophelia Day.</p></div></div><div class='facts-item'><div class='facts-header'><h3 class='facts-number'>4</h3></div><div class='facts-text-wrapper'><h3 class='facts-title'>There is an Annual Campaign Created by WFH for World Hemophilia Day</h3><p class='facts-text'>Every year, the World Federation of Hemophilia releases a World Hemophilia Day campaign toolkit. This toolkit includes information about the specific theme and gives ideas for events and initiatives that individuals, communities and organizations can do to commemorate the day.</p></div></div><div class='facts-item'><div class='facts-header'><h3 class='facts-number'>5</h3></div><div class='facts-text-wrapper'><h3 class='facts-title'>World Hemophilia Day is Commemorated in Different Ways Worldwide</h3><p class='facts-text'>Depending on the country, World Hemophilia Day might see various public demonstrations such as walks or marathons, speeches by key figures, educational workshops, free screening tests, and much more, all using the common language of solidarity and better care for those with bleeding disorders.</p></div></div>
World Hemophilia Day is celebrated on April 17th every year. In 2024, the date falls on a Wednesday.
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