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Huntington’s Disease Awareness Month

Join the fight against Huntington's Disease this month and help raise awareness for this debilitating condition. Every action makes a difference!

Saturday

1–31

May 2027

Last updated February 7, 2026 · by the Holiday Calendar Team

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YEARLY DATEAll of May

OBSERVED INInternationally

CATEGORYAwareness

SUBCATEGORYRare Diseases

INTRO

Introduction

PHOTO

Get ready to raise awareness and support for Huntington's Disease during the entire month of May, also known as Huntington's Disease Awareness Month. This month-long observance was first established in 1993 by then-president Bill Clinton, as a way to educate the public about this rare and devastating neurological disorder. Despite its serious nature, there are ways to get involved and make a difference, from donating to research efforts to participating in local events. Let's come together and show our support for those affected by Huntington's Disease!

TIMELINE

Huntington’s Disease Awareness Month Timeline

Disease Discovery

American doctor George Huntington first describes the symptoms of what would later become known as Huntington's disease.

Huntington's Disease Society Establishment

The Huntington's Disease Society of America (HDSA) is established to support individuals affected by the disease and promote research into treatments and cures.

Genetic Marker Discovery

Scientists identify the first genetic marker for Huntington's disease, allowing for earlier and more accurate diagnosis.

Inaugural Awareness Month

President Bill Clinton officially designates May as Huntington's Disease Awareness Month in order to increase public understanding of the condition.

Genetic Therapy Breakthrough

The first successful demonstration of gene therapy in a Huntington's disease animal model is reported, opening up new potential treatment strategies.

GET INVOLVED

How to Celebrate Huntington’s Disease Awareness Month

Host a fundraising event

Organize a charity event such as a walk, run, or gala to raise awareness and funds for Huntington’s disease research. This is a great way to involve the community and make a meaningful impact.

Share educational resources

Spread awareness by sharing informative articles, videos, or other resources about Huntington’s disease on social media platforms or through email. This can help educate others about the disease and its impact.

VOLUNTEER

Volunteer at a local organization

Reach out to organizations that support individuals and families affected by Huntington’s disease and offer to volunteer your time. This could include helping with events, providing support to patients, or raising awareness in the community.

WEAR

Wear blue for Huntington’s disease

Encourage others to show their support by wearing blue, the official color for Huntington’s disease awareness. This can spark conversations and increase visibility for the cause.

ORGANIZE

Organize a virtual fundraiser

In today’s digital age, it’s easier than ever to organize a fundraiser online. Consider setting up a virtual event, such as a silent auction or online concert, to raise funds and awareness for Huntington’s disease.

WHY THIS DAY MATTERS

Why Huntington’s Disease Awareness Month is Important

Provides support for families affected by Huntington's Disease

For those who have a loved one with Huntington's Disease, this month serves as a reminder that they are not alone in their journey. It brings together a community of support, understanding, and resources for families and caregivers to help them cope with the challenges of this disease.

Brings attention to the disease and those it affects

Huntington's Disease is a devastating genetic disorder that affects both the physical and mental health of individuals. By raising awareness about this disease, we can honor those living with it and educate others about the impact it has on families and communities.

Encourages research and funding for a cure

Huntington's Disease Awareness Month is an opportunity to highlight the urgent need for more research and funding towards finding a cure. By spreading knowledge and support, we can help advance treatments and ultimately find a cure for this debilitating disease.

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