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Get ready to raise awareness and support for Dystonia on May 3 during Dystonia Awareness Week! This condition affects approximately 250,000 people in the United States alone, causing involuntary muscle contractions and abnormal postures. While there is currently no cure, this week serves as a reminder to educate ourselves and others about this neurological disorder and show support for those living with it. So let's come together, spread positivity and understanding, and make a difference during Dystonia Awareness Week!
<div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>1911</div></div><div class="timeline-center"></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>Dystonia Identified</div><div class='timeline-text'>Dystonia condition was first identified by Dr. Hermann Oppenheim, a German neurologist.</div></div></div><div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>1951</div></div><div class="timeline-center"></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>Genetic Link Discovered</div><div class='timeline-text'>Scientists discovered the first links to genetic causes for certain forms of Dystonia.</div></div></div><div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>1976</div></div><div class="timeline-center"></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>Dystonia Medical Research Foundation</div><div class='timeline-text'>The Dystonia Medical Research Foundation was founded to advance research, promote awareness, and support the well-being of affected individuals.</div></div></div><div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>1987</div></div><div class="timeline-center"></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>Botox Approved</div><div class='timeline-text'>The U.S. Food and Drug Administration approves Botox as a treatment option for certain forms of Dystonia.</div></div></div><div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>2000</div></div><div class="timeline-center"></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>Deep Brain Stimulation Treatment</div><div class='timeline-text'>Deep Brain Stimulation procedure started being used to manage symptoms in certain cases of severe Dystonia.</div></div></div><div class='timeline-item'><div class='timeline-left'><div class='timeline-date-text'>2013</div></div><div class="timeline-center"></div><div class='timeline-right'><div class='timeline-text timeline-text-title'>Dystonia Awareness Week Initiated</div><div class='timeline-text'>Dystonia Awareness Week was officially recognized and started being celebrated to promote education and understanding about the neurological disorder.</div></div></div>
<div id='' class='facts-item'><div id='' class='facts-header'><h3 id='' class='facts-number'>1</h3></div><div id='' class='facts-text-wrapper'><h3 id='' class='facts-title'>Host a fundraising event</h3><p id='' class='facts-text'>Organize a charity event to raise funds and awareness for dystonia. This could be a walkathon, a bake sale, or any other creative idea that will bring people together for a good cause.</p></div></div><div id='' class='facts-item'><div id='' class='facts-header'><h3 id='' class='facts-number'>2</h3></div><div id='' class='facts-text-wrapper'><h3 id='' class='facts-title'>Share your story</h3><p id='' class='facts-text'>Spread awareness by sharing your personal experience with dystonia on social media or through a blog. This can help educate others and show them the impact of this condition.</p></div></div><div id='' class='facts-item'><div id='' class='facts-header'><h3 id='' class='facts-number'>3</h3></div><div id='' class='facts-text-wrapper'><h3 id='' class='facts-title'>Wear blue for dystonia</h3><p id='' class='facts-text'>Encourage others to show their support by wearing blue, the color of dystonia awareness, during Dystonia Awareness Week. This is an easy way to start conversations and spread awareness in your community.</p></div></div><div id='' class='facts-item'><div id='' class='facts-header'><h3 id='' class='facts-number'>4</h3></div><div id='' class='facts-text-wrapper'><h3 id='' class='facts-title'>Organize a virtual event</h3><p id='' class='facts-text'>In the age of social distancing, a virtual event can be a great way to celebrate Dystonia Awareness Week. This could be a webinar, online support group, or even a virtual paint night where participants can create art related to dystonia.</p></div></div><div id='' class='facts-item'><div id='' class='facts-header'><h3 id='' class='facts-number'>5</h3></div><div id='' class='facts-text-wrapper'><h3 id='' class='facts-title'>Volunteer at a local organization</h3><p id='' class='facts-text'>Reach out to local organizations that support those with dystonia and offer your time as a volunteer during Dystonia Awareness Week. This is a great way to support the cause and make a difference in your community.</p></div></div>
<div id='' class='whywelove-item'><div id='' class='whywelove-letter-cont'><div class='whywelove-letter'>A</div></div><div id='why-we-love-main-cont'><h3 id='' class='whywelove-title'>It brings awareness to a lesser-known disorder</h3><p id='' class='whywelove-text'>Dystonia is a neurological movement disorder that affects thousands of individuals, yet many people have never heard of it before. Dystonia Awareness Week is important because it sheds light on this condition and helps educate the general public about its symptoms and impact.</p></div></div><div id='' class='whywelove-item'><div id='' class='whywelove-letter-cont'><div class='whywelove-letter'>B</div></div><div id='why-we-love-main-cont'><h3 id='' class='whywelove-title'>It provides support for those affected by dystonia</h3><p id='' class='whywelove-text'>Dystonia Awareness Week not only raises awareness, but also serves as a way to bring together and support individuals with dystonia. It allows them to connect with others who understand their struggles and share their experiences in a safe and understanding environment.</p></div></div><div id='' class='whywelove-item'><div id='' class='whywelove-letter-cont'><div class='whywelove-letter'>C</div></div><div id='why-we-love-main-cont'><h3 id='' class='whywelove-title'>It encourages funding for research and treatment options</h3><p id='' class='whywelove-text'>By bringing attention to dystonia, Dystonia Awareness Week also helps spur funds towards research for better treatment options. This brings hope to those living with dystonia and increases the likelihood of finding a cure in the future.</p></div></div>
<div class='facts-item'><div class='facts-number-wrapper'><p class='facts-number'>1</p></div><div class='facts-core-content'><h3 class='facts-title'>Dystonia Affects Both Children and Adults</h3><p class='facts-content'>Dystonia can affect anyone, regardless of age, ethnicity, or background. Its onset can begin in childhood or adulthood, showing how encompassing it can be.</p></div></div><div class='facts-item'><div class='facts-number-wrapper'><p class='facts-number'>2</p></div><div class='facts-core-content'><h3 class='facts-title'>More Than 13 Forms of Dystonia Exist</h3><p class='facts-content'>There are over 13 identified types of Dystonia, each characterized by the specific muscle groups they affect and the manner in which they manifest.</p></div></div><div class='facts-item'><div class='facts-number-wrapper'><p class='facts-number'>3</p></div><div class='facts-core-content'><h3 class='facts-title'>Dystonia is the Third Most Common Movement Disorder</h3><p class='facts-content'>After tremor and Parkinson's disease, Dystonia takes the spot as the third most common movement disorder, affecting millions worldwide.</p></div></div><div class='facts-item'><div class='facts-number-wrapper'><p class='facts-number'>4</p></div><div class='facts-core-content'><h3 class='facts-title'>Dystonia Can Be Isolated or Part of a Bigger Condition</h3><p class='facts-content'>Dystonia can occur as a standalone condition (primary dystonia) or be part of symptoms of other neurological conditions like Parkinson's disease (secondary dystonia).</p></div></div><div class='facts-item'><div class='facts-number-wrapper'><p class='facts-number'>5</p></div><div class='facts-core-content'><h3 class='facts-title'>Dystonia Patients Possess Normal Life Expectancy</h3><p class='facts-content'>In most cases, Dystonia does not impact the life expectancy of its patients as it majorly affects muscle groups without compromising vital body functions.</p></div></div>
Dystonia Awareness Week is celebrated on May 3 every year. In 2024, Dystonia Awareness Week will occur on a Friday.
2023
May 3
Wednesday
2024
May 3
Friday
2025
May 3
Saturday
2026
May 3
Sunday
2027
May 3
Monday
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